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Publications and Information

The following is provided for informational purposes only.


Clinical Trials Definitions of Phases
Phase 1 – Designed to see if experimental medicine is safe - Very few patients (n=10-30)
Phase 2 –Designed to see if treatment is effective (More patients - generally less than 200)
Phase 3 - see if treatment is safe and effective AND works better than currently available drugs (Large numbers of patients - several hundred to thousands)

Multiple Myeloma Classes of Drugs/Therapies:

  • 1. Proteasome Inhibitors - Bortezomib/Velcade; Carfilzomib/Kyprolis; Ninlaro/Ixazomib
  • 2. Immunomodulating - Thalidomide, Lenalidomide/Revlimid; Pomalidomide/Pomalyst
  • 3. Monoclonal Antibodies - Daratumamab/Darzalex; Elotuzumab/Empliciti
  • 4. Histone Deacetylase - Panobinostat/Farydak.
*New agent - Venetoclax - Venetoclax is an oral BCL-2 inhibitor that kills myeloma cells, especially for patients with an 11;14 chromosome translocation. A Precision Medicine Drug relapsed or refractory myeloma. Often used with Velcade (Bortezomib) and Dexamethasone (Steroid).

Publications, Webinars, etc.
The IMF posts webinars with useful information. Visit the IMF TV and select Teleconferences.

IMF - Smart Patients is an online peer-to-peer program - community where patients and caregivers learn from each other about treatments, challenges, and how it all fits into the context of their experience.

The Leukemia and Lymphoma Society has a Patient Reimbursement Program providing up to $500/year (July-June) reimbursement for certain travel and medications for multiple myeloma patients. Application forms are available at meetings. Contact LLS, Georgia Chapter Patient Services Manager, Rosalinda Ramirez, 404-720-7807. LLS also publishes an email newsletter "MyelomaLinks". Visit their web site to sign up for the newsletter.

The Leukemia and Lymphoma Society has a Co-Pay Assistance Program (click here for details). The phone number for more information is 1-877-557-2672.

CancerCare - For the latest in cancer treatment and information, plus free teleconferences. Subscribe for free to their newsletter.

Clinical Trial Notification Service - Sign up via CenterWatch and they will notify you according to the parameters you enter, such as disease and geographic area.

CURE magazine is available free - call 800-210-CURE [2873] or order online.

The International Myeloma Foundation provides valuable resources for patients, and family members through their publications from understanding the basics to a comprehensive caregiver's manual. The IMF also publishes the periodicals Myeloma Today and Myeloma Minute which are available in PDF or subscriptions. (Although free, subscriptions must be updated yearly).

Myeloma Focus published quarterly by The Multiple Myeloma Research Foundation. Free. Call 203-972-1250.

National Cancer Institute (NCI) offers publications on chemotherapy, diet, radiation therapy and more.

The Neuropathy Association publishes Neuropathy News. Call 1-800-247-6968. May be of interest to those using thalidomide or Velcade.

Patient Advocate Foundation - "Insuring equal access to healthcare for all Americans". Assistance with any health/insurance-related issues (brochure available at our meetings). Patient Advocate Foundation Web Site or call 1-800-532-5274

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