Resources

 

Links to these websites are provided for informational purposes only.

Additional Resources, Updates, and Educational Opportunities added September 2026

Nutrivention 5: 12-week study for newly diagnosed MM patients to determine the relationship between a whole-food, plant-based diet and MM. Dr. Urvi Shah of Memorial Sloan Kettering (MSK), Principal Investigator

National Bone Marrow Transplant Link

Multiple Myeloma: Immunotherapy, Sequencing and Updates. 57 min video.

Triage Cancer
Understanding Your Rights When Navigating Chronic or Serious Health Condition
Triage Health provides education on legal and practical issues to help people navigate health care, employment, insurance, and financial challenges associated with chronic/serious health conditions.

Blood Cancer United (BCU, formerly LLS)
Clinical Trial Support Center (CTSC): Nurse Navigator Service. FREE. Do you have the right health insurance coverage for your needs? Get help with your insurance. Call 833-507-8036 or online for an appointment. Medical Debt Case Manager.
Key Insights: Treating Myeloma — Video 1:25

Pen My Path – 4-Week Journaling Class
Started August 20. My Path is an expressive writing program offered to you free of charge. Limited to 100 people.
Pen My Path – Already Started

CURE/CURE Connections
Cancer patients – stay active. “Take it easy” is not the best message for anyone exposed to surgery, chemotherapy, or radiation. Causes high risk for loss of musculoskeletal, cardiopulmonary, and functional strength. Everyone should get a rehab consult.

Iberdomide and the Rise of CELMoDs in Multiple Myeloma Dr. S. Lonial. Video – 1:12.

HealthTree Foundation
The Survivorship Roadmap – Recording – 52 min. Dr. Heather Wolfe

Cancer Patient Relationship Style and Coaching
Understanding the Role of Patient Relationship Style in Cancer Coaching: Practical Application of Attachment Theory. Application attached – observational study.

The Power of Movement: Benefits of Exercise for Cancer Patients
Video recording available. This webinar explores the benefits of movement and exercise for cancer patients and survivors.

Struggling with Fatigue and Brain Fog? Solutions for Myeloma Patients. Video

Understanding Your Myeloma Labs: What They Mean, What Matters, and When to Ask. Video

Safe Strength and Endurance Exercises for Myeloma – 45 min Video.

International Myeloma Foundation 1-800-452-CURE	The International Myeloma Foundation (IMF) is here to help everyone battling Myeloma - patients, families, friends, caregivers, and the medical and scientific communities. IMF Conference Series - Highlights from ASCO, IMWG & EHA Watch Video Movement for Myeloma Patients and Care Partners Blog Question to the doctor: Before starting to exercise: Active bone lesions or recent fractures; severe anemia; severe fatigue; uncontrolled pain; recent surgery; balance issues or neuropathy. EU Approves Subcutaneous Sarclisa (Isatuximab): Treatment via On-Body Injector Provides flexibility to administer at home and outpatient. Dr. Joe Answers Questions – Anito-cel Progress, BM Biopsy, Blood Test Dr. Joe Video. High-Risk Smoldering MM Treatment Explained…in a Minute or Less Dr. Joe Video. Trispecific Antibodies Explained 1-minute video with Dr. Joe.
Winship Cancer Institute of Emory University	The myeloma program at the Winship Cancer Institute is recognized as a clinical and research leader in this cancer of blood plasma. There are many promising new therapies available at Winship and our team is available to speak with individuals and referring physicians about the best options for multiple myeloma treatment and cancer care. Location: The Winship Cancer Institute of Emory University 1365C Clifton Road, Atlanta, Georgia 30322
Smart Patients	Smart Patients is an online community where patients can discuss disease specific information.
Patient Empowerment Network	How AI is Shaping the Future of CAR-T and Myeloma Care – 4 min video. CAR-T Therapy Program Resource Guide – Dr. Beth Faiman CAR-T Therapy: Advice for Preparing, Coping, and Thriving – 34 min video. Planning for CAR-T Cell Therapy: What Support Do You Need? – 3 min video, Dr. Beth Faiman. Getting to CAR-T: How Patients Overcome Access Barriers – 3 min video. CAR-T Therapy Recovery: What to Expect and How to Protect Yourself – 6 min video.
Multiple Myeloma Research Foundation	Devoted to raising research funds towards finding a cure for MM. They also publish a newsletter entitled Myeloma Focus. (MMRF®) next-generation Translational Research Umbrella (TRU) program seeks the most pressing questions facing multiple myeloma patients. First sub study will focus on unknowns for two MM immune therapies: CAR T-cell and bispecifics. TRU builds on the CoMMpass and Immune Atlas studies, two landmark MMRF data-generation initiatives that changed our understanding of multiple myeloma. Hearn Jay Cho, chief medical MMRF officer, notes that 80 percent of patients on the Tecvayli-Darzalex combination with PFS status after three years is unprecedented. “Darzalex attaches to myeloma cells and flags them for the body’s immune system to eradicate them. Tecvayli grabs the myeloma and body’s T cells and brings them together to kill the cancer with two drugs combo with a one-two punch.
Patient Power	Multiple Myeloma Eye Complications. Medical Article. Multiple Myeloma Eye Complications Medical Article We have good options for Myeloma ~ 5 min video. Dr. Abounour @ASCO, July 1, 2026. Cancer Related Nausea: Causes and Treatment Options Who is at Risk for Myeloma? Age, Family History and More Article
The Leukemia and Lymphoma Society	Myeloma-specific site to help people affected by myeloma to more easily find information and resources specific to this disease.
National Cancer Institute	A wide range of accurate, credible cancer information brought to you by The National Cancer Institute.
Myeloma Institute for Research and Therapy, ACRC	The Myeloma Institute for Research and Therapy, Arkansas Cancer Research Center at the University of Arkansas for Medical Sciences, is probably the most well known myeloma center in the world.
Oncolink	University of Pennsylvania Cancer Center
Cancer Online	Access to full text articles (must register). Click "search articles" and then type "myeloma".
Patient Advocate Foundation	"Insuring equal access to healthcare for all Americans". Assistance with any health/insurance-related issues.

Please contact us if you have additional resources which may be helpful to others or if a link is broken. Please send an email to the Webmaster with your information. Thank you.